Columbia, SC (WLTX) -- A year ago we told you about a Camp Kemo camper in need of bone marrow transplant; however sadly, Alyah Haynes lost her life fighting the genetic disease 'Fanconi Anemi'.
"You finally got your wings." It's just one of the many quotes and memories that rest on a table in the dining room of Phaedra Haynes, remembering her eight-year-old daughter Alyah.
"She was a very strong and happy little girl," said mother Phaedra Haynes. "We did whatever that would keep her busy."
Last October Haynes got the news she had been waiting on, a bone marrow match was found for her daughter fighting the genetic blood disorder Fanconi Anemia. But after 3 separate transplants at the hospital in Minnesota, her white blood count still wouldn't rise.
"On the 19th of June they woke me up out of my sleep and they were like, we can't get Alyah's blood pressures down. You know. We don't think she is going to make it through the night."
Haynes called the family together to be with Alyah as she went in for one last surgery.
"I finally looked at her and I held her hand and I gave her a kiss and I told her, I am going to be alright, you go on and be with the Lord."
The once Camp Kemo camper that loved her school work and dancing, passed with her family by her side. Tonight, her mom is still fighting for her daughters cause.
"It was a very difficult time to endure. But I promised her that her journey will continue on."
Haynes still is active in fighting for bone marrow patients, encouraging anyone she can to get tested to be a bone marrow donor. Something she believes will prevent others from having to remember their loved ones through memories on a table.
"I am just so thankful to God that he blessed me to be her mother for eight years. Cause he could have chosen anyone in the world, but he chose me."
Haynes tells News19 that next month she is running a 5K in Charlotte In Aalyah's name for the Be The Match Foundation. If you would like to know more about how you can get tested to be a bone marrow donor, log on to Be the match.