Students and teachers at Pontiac Elementary raise money in support of student battling Sanfilppo Syndrome.
Columbia, SC (WLTX)- Eliza O'Neill's support group in the midlands and around the country continues to grow each day. The 4-year-old was diagnosed with a rare genetic disease called Sanfilippo Syndrome Type A last year.
Eliza is a student at Pontiac Elementary, where her fellow students and teachers have dedicated most of their fundraising efforts this year to help the little girl.
"She was sick and I helped her by giving her enough money to help her get some new medicine and she wrote me a thank you letter," said first grade student Michael Boulware.
Bouleware doesn't really know Eliza or much about the rare disease she is battling, but he does know helping others is important to him.
"I knew it was the right thing to do, even though I would have a lot more money. I wanted to help her out and they gave me my jar back," said Boulware.
The first grade student donated his entire piggy bank to help Eliza live a better, longer life.
Eliza's family is working to raise money for a clinical trial. There are research teams making significant breakthroughs in Sanfilippo Syndrome research, including a gene therapy cure that has been successful in mice. Gene Therapy at Nationwide Children's Hospital in Ohio needs more funds to move the clinical trial to the human stage.
Eliza supporters have raised $170,000 dollars to date.
One upcoming event is Saturday: Eliza's 9 Month Miracle 5k
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